CICT works as a specialist resource for children and young people with complex medical needs and their families. CICT provide education & training to children young people and their families, empowering and supporting them to take control of their chronic condition. The service has a strong emphasis on user participation and involvement and utilises this to help improve long term outcomes for both families and the service.
The service is also an integral part of transition planningfor children approaching 18 years of age who will require the support of adult services. The multi-agency assessment for transition (MAAT) gathers information which will enable Local Authorities (www.bedfordboroughpartnership.org.uk or www.centralbedfordshire.gov.uk/health-and-social-care/adult-care/living-with-a-disability/living-with-a-disability.aspx) to plan for each person individually and for service providers to design the right provision (See resource section for details).
The Service consists of a multidisciplinary team comprising of a number of specialists working together to provide a co-ordinated approach to meeting the needs of children and young people with complex health needs in the community. The team include the following:
This service is offered to any child or young person with additional health needs, Specialist Service is available to any child or young person with assessed complex clinical needs be it a chronic, physical, palliative care or technology dependent need.
Please note: when seeking/receiving advice in regard to patient care and making referrals, NHS Connecting for Health Information Governance standards and policies must be adhered to.
Autism in Children & Young people available at http://pathways.nice.org.uk/pathways/autism-in-children-and-young-people
Multi Agency Assessment Tool (MAAT) transition document on
Serious conditions and special needs in children http://www.nhs.uk/Planners/birthtofive/Pages/Seriousconditions.aspx
Council for Disabled Children is the umbrella body for the disabled children's sector in England, with links to other UK nations. It works to bring together the diverse range of organisations that work with and for disabled children to support the development and implementation of policy and practice, available at www.councilfordisabledchildren.org.uk/
Early support programme information available at www.earlysupport.org.uk
Contact a Family brings together the families of children with special needs and gives information and advice. You can phone the free helpline on 0800 808 3556 or go to www.cafamily.org.uk
Families United Network - Support group for Bedfordshire families with a child with a disability or special needs available at http://www.familiesunitednetwork.co.uk/
Autism Bedfordshire - Autism Bedfordshire is an independent charity providing information, advice, emotional and practical support to individuals with Autistic Spectrum Conditions, (A.S.C.) their parents/carers, families and associated professionals throughout Bedfordshire and Luton available at http://www.autismbedfordshire.net/
Mencap - aims to work in partnership with people with a learning disability and all Mencap services support people to live life as they choose. Local branch information available at http://www.bedfordmencap.org.uk/
Last updated: 26/04/2012
Update due: 26/04/2013